house resolution no.341

Reps. Hernandez, Allor, Crawford, Garza, Haadsma and Kuppa offered the following resolution:

A resolution to declare December 2, 2020, as Vein of Galen Malformation Awareness Day in the state of Michigan.

Whereas, On December 2, 2010, Caiden Hernandez was born with a Vein of Galen Malformation, a rare medical condition which often proves fatal if left untreated; and

Whereas, This legislative body has a unique opportunity to educate the public about this condition; and

Whereas, It is believed that less than 500 cases of Vein of Galen Malformation are diagnosed in the United States each year, and

Whereas, Without recognition from this legislative body, it is unlikely that most parents will ever become aware of this condition until it is too late; and

Whereas, Early detection is the key to survivability when treating this disorder; and

Whereas, A prenatal ultrasound late in pregnancy is currently the best way to detect a Vein of Galen Malformation early enough for successful treatment; and

Whereas, Children who receive early treatment for this condition can and do often make a full recovery and go on to lead a long, healthy life; now, therefore, be it

Resolved by the House of Representatives, That the members of this legislative body declare December 2, 2020, as Vein of Galen Malformation Awareness Day in the state of Michigan; and be it further

Resolved, That we urge all Michiganders to use this day as an opportunity to educate themselves about Vein of Galen Malformations, and to learn about the importance of early detection in treating this often fatal condition.