house resolution no.98

Rep. Miller offered the following resolution:

A resolution to declare May 15, 2019, as Tuberous Sclerosis Complex Awareness Day in the state of Michigan.

Whereas, It is important to increase awareness of tuberous sclerosis complex (TSC) and support programs to increase research and improve treatment of tuberous sclerosis. It is also vital to improve training and support for individuals with tuberous sclerosis and those who care for individuals with tuberous sclerosis; and

Whereas, The Tuberous Sclerosis Alliance is the only national voluntary health organization dedicated to finding a cure for TSC and improving the lives of those affected through research, support, and education; and

Whereas, TSC affects an estimated 1 in every 6,000 live births in America; and

Whereas, TSC affects some people severely, while others are so mildly affected that it often goes undiagnosed; and

Whereas, People with TSC often develop epilepsy and autism. In fact, TSC is one of the leading known genetic causes of epilepsy and over half of those who have TSC also have autism. Many other individuals encounter behavioral and learning problems. Despite this, many professionals in the medical and educational fields are still unaware of the best methods to diagnose and treat TSC; now, therefore, be it

Resolved by the House of Representatives, That the members of this legislative body declare May15, 2019, as Tuberous Sclerosis Awareness Day in the state of Michigan. We recognize and commend the families and individuals affected by TSC for their sacrifice and dedication in dealing with this devastating condition. We commend them for providing the special needs of both children and adults with TSC and for absorbing significant financial costs for treatment and support services; and be it further

Resolved, That we stress the need to begin early intervention services soon after a child has been diagnosed with TSC. Early intervention strategies are the primary therapeutic options for young people with TSC, and early intervention significantly improves outcomes for people with TSC. Early intervention can reduce the level of funding and services needed later in life.