Reps. Lyons, Brown, Durhal, Geiss, Goike, Heise, Hovey-Wright, Howrylak, Lori, Poleski, Price, Roberts and Slavens offered the following resolution:

            House Resolution No. 141.

            A resolution to declare May 15, 2013, as Tuberous Sclerosis Awareness Day in the state of Michigan.

            Whereas, Increasing awareness of tuberous sclerosis complex (TSC), supporting programs for increased research and improved treatment of tuberous sclerosis, and improving training and support for individuals with tuberous sclerosis and those who care for individuals with tuberous sclerosis is important; and

            Whereas, The Tuberous Sclerosis Alliance is the only national voluntary health organization dedicated to finding a cure for TSC and improving the lives of those affected through research, support, and education; and

            Whereas, TSC affects an estimated 1 in every 6,000 live births in America; and

            Whereas, TSC affects some people severely, while others are so mildly affected that it often goes undiagnosed; and

            Whereas, People with TSC often develop epilepsy, autism, and learning and behavioral problems.  In fact, TSC is the leading known genetic cause of epilepsy and autism.  Despite this, many professionals in the medical and educational fields are still unaware of the best methods to diagnose and treat TSC; and

            Whereas, May 15, 2013 is Tuberous Sclerosis Complex Global Awareness Day; now, therefore, be it

            Resolved by the House of Representatives, That the members of this legislative body declare May 15, 2013, as Tuberous Sclerosis Awareness Day in the state of Michigan.  We recognize and commend the families and individuals affected by TSC for their sacrifice and dedication in dealing with this devastating condition and providing for the special needs of both children and adults with TSC and for absorbing significant financial costs for treatment and support services; and be it further

            Resolved, That we stress the need to begin early intervention services soon after a child has been diagnosed with TSC, noting that early intervention strategies are the primary therapeutic options for young people with TSC, and early intervention significantly improves outcomes for people with TSC and can reduce the level of funding and services needed later in life.